Living With the Guilt

Having a child with a disability can certainly be difficult. There are moments where we wonder if anyone will ever understand or get what it is like to walk in our shoes. Does anyone around us really “get it”? How many times do we feel guilty for seeing ONLY our child’s disability instead of WHO our child is. The guilt is real. The daily behaviors and demanding needs shadow our ability to focus on our child as a person.

However, we have learned that sharing our feelings helps us cope. Some of us have people to help us process the guilt.

Who is your go-to person during your times of emotional struggle? Or are you the person that tends to do it alone?

2 Responses

  1. Sometimes living silently with the guilty thoughts are better then expressing them. I never want my child to think of my guilt and feel as if it is his fault. I just have to remind myself that God gave me my son, exactly as he is, for a reason. Both my husband and I have told him how rare his condition is and reinforced that his only limitations are his own motivations. Embracing this theory has not been easy. Every time I feel like we have reached a summit, he shows me we he has more to give. Many days I question myself, if we are doing what is best for him, the answer is always yes, we are doing the best we can.

  2. Jackie, That’s a great perspective. I do agree that the guilt part needs to be kept completely away from the child. I too feel that GOD gave us a perfect child in his image and we need to embrace it as wholeheartedly as we can.

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